Epilepsy Warriors! Seize The Day!

Thoughts from a Balcony from the EpilepticToker!

Just some thoughts from the EpilepticToker. We've been asked about Living with Epilepsy so here's some thoughts.....from a balcony. Lmao!

It’s Epilepsy Awareness month and I have been sharing my experiences with this illness on my Instagram. I’ve also shared a few things here. From sharing some seizure stories down to just I guess living with Epilepsy in general. Epilepsy Awareness month is still in full swing with no signs of slowing down and neither are we! Today’s post is another shared experience of mine. We had some messages come through on Instagram about “Living with Epilepsy”. While we have talked about it on here before in terms of anxiety and depression, why not go for it again. I enjoy talking and meeting with you all who deal with this. It helps us know we’re not alone. Living with Epilepsy is such an ongoing topic of discussion that I’m sure even this post won’t cover it all.

When I first got diagnosed with Epilepsy, it was probably one of the hardest things. I say “probably” because I’m still young and still going through “Life” so I still have a lot to learn. However, I have learned so much since then and I have also noticed this illness of mine evolve over the years. It was still one of the hardest things though. At such a young age, I had to learn to adjust. It wasn’t easy. Seeing all my friends lead what seemed to be a normal life while mine shifted suddenly was even harder. It seemed I was always saying “I’m sorry guys, I can’t.” too often. It sucked, you know but eventually it became my normal. Don’t get me wrong, it was still a shitty feeling. That feeling turned into a mood. All my friends began do their own thing without me. I always wondered was it because of my Epilepsy, the “I can’t” or just my mood which at times I couldn’t help because it was just a side effect of the medication. Seizures aren’t the only thing that sucks!


Screw Epilepsy!


Seriously though, screw it! Seizures suck, there’s no denying it. No matter how many ways you cut the cake, it sucks! Many of us within the community suffer from various forms. We all go through it different but at the end of the day, we’re not alone! These are my stories. I hope they help you know that you are not alone even though it may feel that way at times. I see the world even when it doesn’t see me. I see you too. 😁💜


As time went on I learned to live with it I guess. If you know me, you know that I have learned to take the good with the bad. It’s a phrase I use quite often. However, it wasn’t always the case. The spectacles wore on my face bore lenses that only allowed me to see a world of negativity. In turn, that’s all I harbored on the inside. Negative emotions and hatred toward any and everyone flowed through every vein. Over time, I began to reflect on what I called “old me” and wondered how he would feel about this. What would he say? Well, he’d probably call me an asshole first and foremost. He’d tell me to stop and get up because you can’t fix whatever this is from down there. See, when things go wrong, you don’t go with them. I know because that’s what I used to do. When you do that, wrong things follow and everything bad that could happen, does happen so of course everything is negative. Don’t do that! It’s easier said than done. Nothing great happens overnight.

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Living with Epilepsy has been one hell of a roller coaster that I am still on. It’s been ten years since my diagnosis. Ten years and there isn’t a day that goes by that I don’t learn something new. I use “Roller Coaster” because it’s been an up and down ordeal. I’ve learned to just go with it. Like I said, there’s no need to be negative. Why? Then you push people who matter away and become an asshole that no one wants to be around. Just go with the flow. I spent so much of my life swimming against the flow of life that I began to drown. I think that’s what we forget sometimes. We get caught in the rat race of life then we crash and burn. Just go with it. Like I said, it may be hard, it may seem hard but anything worth doing is never easy. I have met some of you within the Epilepsy Community who have a negative outlook. While I understand this mindset, it’s something I think you should tackle now. If not, the day will come where you’ll realize but by then, it will be too late. Just remember, there’s things that matter and things that don’t! On that note, these have been thoughts from a balcony from the EpilepticToker! These of course won’t be the last! I hope you guys are staying safe and medicated of course! Drop some comments below and share you “Living with Epilepsy” experiences. Thanks for reading ya silly sallies! Until next time, stay safe, stay medicated and relax, it’s natural! I love you guys and remember, seize the day!💜


Don’t Miss Out!


Seriously though, don’t. If you haven’t already, subscribe to our site and get notified when new posts are available. We promise we won’t spam your inbox. We hate that shit too so we wouldn’t do that to you. To prove our point, did ya see any subscription pop-ups eye-rape you while you enjoyed this amazing content? Exactly. You can just enter that email right there please and thank you. 💜😁

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